• Shelbyeileen@lemmy.world
    link
    fedilink
    arrow-up
    1
    ·
    2 months ago

    You’re in luck! I volunteer as a Disability advocate for EDS and Rising Voices of Narcolepsy.There’s a test for EDS called the Beighton Scale. If you have all 9, it’s a guarantee for the hypermobile type of it called hEDS. Even if you’ve got 5-6 on the scale, you probably have it. 9 is the worst, what I have. I’ve needed multiple surgeries and was designated as fully disabled by a judge in my early 20s.

    Having answers brings peace of mind, but what’s even more important is that your treatments will change. People with Ehlers Danlos Syndrome ABSOLUTELY CANNOT use the antibiotics in the Cipro family. It causes vein collapse, circulatory system leakage, and aortic aneurysms. It can kill you. You also can’t do most stretches, so Yoga is a no go and physical therapy can only focus on strengthening your injured areas.

    Here’s the test. Hope it helps!

    https://www.ehlers-danlos.com/assessing-joint-hypermobility/